Tag Archive for 'helping children with cancer'

Sheri’s Journal: Karma Krusade – Be the Match

Good Morning SuperForest ,

Wowza, what a week!

I hesitated writing this piece because at first glance all I could see was a big honking FAIL. After I removed myself from the emotional letdown I could see it far differently. So why don’t I let you in on the story…

Several days ago my boss was walking around passing out these fliers.

 

As this fluttered to my desk and I caught sight of this beautiful little boy I dropped what I was doing to read the message. 

Born 8 weeks premature with Down Syndrome, Logan was just diagnosed with Leukemia. Three years old and barely broken out of his alabaster egg, this gorgeous little monkey is now facing the battle of his lifetime. 

Let me tell you, as a parent to a child with special needs my heart chipped a tiny bit.

For those of you who don’t know – my son who was adopted at birth was diagnosed with autism and ADHD at 3 years old. Looking at this picture of Logan I realized my child was probably only a chromosome or two away from his conditions.

For the next day I scoured the Internet researching the process of bone marrow donation. There are two options depending on the patient.

The first is a sort of mini-dialysis. Injections to bolster blood-forming cells are given for several days before your blood (now full of life-giving nectar) is drawn. It’s removed through a needle in one arm and passed through a machine that separate out the blood-forming cells. The remaining blood is returned to you through the other arm. Not too bad until I read that it can take up to 6 hours. Yikes~

The other method of donation is liquid marrow is withdrawn under general anesthesia from the back of the pelvic bone. This procedure can be done locally or the donor is asked to travel to the patient’s home state…gee, hadn’t thought about that.

My rational brain keep needling me (no pun intended)….what about side effects, what about the recovery time, what about time off from work, what about medical expenses, what about hopping on a cross-country plane?

Weighing all the factors and fears my eyes kept coming back to Logan’s and thoughts of countless other leukemia patients filled my soul….what if it were my son….what if I could help save a life…

How awesome would it be to leave this earth knowing that my days here had some meaning…that I left it and someone I didn’t even know in a better place. 

Taking a deep breath and squashing all those nervous pterodactyls in my stomach I logged onto the website “Be the Match” to sign on to be a bone marrow donor. I planned to drive across town to have the  cheek swab done next week and firm up my registration. (gulp…Honey, guess what I did today!)

My heart sank….when I got to the medical history portion of the registration it turns out I am not a donor candidate. Genetic back problems came rearing their ugly head; my marrow was not going anywhere.

The disappointment hung for hours until the light of what I had actually done hit me. The significance of what I planned to do hadn’t changed – merely the path. I had sent out good intentions and love to all the leukemia patients worldwide! 

So SuperForesters, what have you got to lose? Life is just too precious to waste…just ask Logan.

You and I are totally free to live the kind of life we want. I want mine to have had more value than just acquiring stuff and living comfortably. I may die rich. I may die poor. But I won’t die with my good intentions still in me.

Love and gratitude

Sheri

Being a good deed doer :)

     Today  is a day of magic in Poland!  ( it happens every first weekend in January) It is very cold outside, lots of snow- that’s true… BUT inside  our hearts are very hot:) as there is an amazing event called:

 

 naglowek_18final

      18 years ago an amazing man called JUREK OWSIAK  (you can see him in the photo above) with a group of friends (Lidia Niedźwiedzka-Owsiak, Bohdan Maruszewski, Piotr Burczyński, Paweł Januszewicz, Walter Chełstowski, Beata Bethke) have decided to raise money for pediatric cardiac surgery Child Health Centre in Warsaw. It turned out to be a great success:)… and that’s  how the story about making incredible things possible begins :)

The secret is in us, it is rooted in our nature, we must just allow it to speak, we must listen;)

      After the first final Jurek Owsiak  has set up a non profit organization called in Polish :  ”Wielka Orkiestra Świątecznej Pomocy” ( The Great Orchiestra of Christmas Charity). The aim of this organization is to help people and children with  serious health problems and to provide hospitals with the necessary medical equipment.

Today, we have XVIII final !!!It is so incredible and awesome, that somebody’s idea can change into a nation -wide movement !!!

You can check here how much money did we raised in previous years:

http://www.en.wosp.org.pl/the_great_finale/the_wosp_finale_in_numbers

In previous years the money were spent for:

  • Children’s heart surgery
  • Saving children victims of accidents
  • Saving the lives of infants and young children
  • Saving children with kidney diseases
  • Saving children with inborn defects
  • Progressive methods of diagnostics and treatment in neonatology and pediatrics
  •        This years the orchiestra collects money for children’s oncology (the same as previous year, as there is still not enough equipment like  CAT scanners or neuronavigation devices)

    The foundation has started three major nation- wide programs ( theses are medical and educational programmes):

    Over 1 million of school children were taught the first aid

          The foundation organizes one of Europe’s biggest open-air music festivals, which is called Przystanek Woodstock Festival :) You can listen a lot of good music there. You can also listen  to wise and famous people from the world of media and politics ( it is a form of discussion pannels – a way of connecting  generations)

    woodtock

    woodstock

         The peace patrol (another great idea of Jurek Owsiak) are people who are  medically trained in order to take care of those having fun during Woodstock festival.

    Every person that supports the orchiestra is given a heart like this:

    1840-xl

    The snow is falling, but there is an ocean of hot and red hearts outside :). People are wearing it with pride on coats and jackets.

    At 8. pm everything finishes with concerts called  ” sending a light to heaven” :) Gosh, how much I love it:)

    I can feel amazingness in the air, so PRACTISE BEING A GOOD DEED DOER  every day, every moment, start right now :) !

    ps. Please visit WOŚP  online ( the page is in English):

    http://www.en.wosp.org.pl/

    Much love, E.